Tuesday, July 21, 2009


Gary has enjoyed more days outside, free from the tubes! (see attached photo)


The last few days have brought out emotions. Although difficult to experience, the emotion is actually another positive milestone as it demonstrates that area of the brain is functioning appropriately. He is beginning to realize (at times) the impact of what has happened and as you might imagine this has stirred up various emotions including anger, frustration, laughter and tears. I have experienced his challenges as wife and best friend but I can only imagine how frustrating it must be to try and attempt to do something that once was a natural action but now met with extreme difficulty. He asks what happened, however he has yet to realize/grasp how far he has come in the past 2 months. Prior to May 13th (cardiac arrest), Gary amazed me/us with all that he has conquered living with dermatomyocitis. We all know he is a fighter with an amazing will and determination. Although the recent challenges have created new obstacles I am confident he will overcome and prevail. He is surrounded by lots of love, tremendous support and encouragement including the staff, clinicians, family and friends. He is truly an inspiration to all. I have to share one very touching moment yesterday was when he realized/really saw the amount of support, prayers, and well wishes (cards, emails) posted around the room. He was very touched by the volume of support. We truly appreciate the continued prayers, love and well wishes.
With much love and strength,
-Mia

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